© 2022 Laysan Muzipovna MUKHARYAMOVA, Zhanna Vladimirovna SAVELYEVA
MA&B 2022 – № 2(24)
Mukharyamova L.M., Savelyeva Zh.V. (2022) Problema ehksklyuzii detej s RAS i ikh semej v Rossii: grani neravenstva [The problem of exclusion of children with ASD and their families in Russia: the edges of inequality], Meditsinskaya antropologiya i bioetika [Medical Anthropology and Bioethics], 2(24).
Doctor of Political Sciences, Professor,
Head of the Department of History, Philosophy and Sociology
Kazan State Medical University
Doctor of Sociology,
Associate Professor of the Department of General and Ethnic Sociology
Kazan Federal University
Keywords: autism spectrum disorders, social exclusion, social inequality, autism, social inclusion, neurodiversification.
Abstract: The prevalence of autism in Russia and the world is growing. Issues related to social inequality and social exclusion of children with autism spectrum disorders and their families are becoming more acute. According to the sociological research, seven facets of inequality that limit access to the benefits and resources of the social system for children with ASD are identified and revealed. The interpretations of autism within the framework of professional discourse, the biomedical/social model of autism already contain ideological intentions and are becoming the socio-cultural basis of inequality. In Russia, at this stage, an important factor reducing the possibility of receiving help is the lack of diagnoses of autism. An acute issue is the problem of accessibility of medical services for children with ASD who have special needs. The problems of inclusive education for children with ASD are also detailed. The problems of accessibility of physical space and the formation of a friendly environment are considered in the context of creating inclusive spaces. The trends of media construction of autism are analyzed, some of which have a positive impact on the formation of a friendly environment.
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